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← Return to Central Neurocytoma (recurring) diagnosed today with tumors #5 & 6
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Central Neurocytoma (recurring) diagnosed today with tumors #5 & 6
Brain Tumor | Last Active: Mar 18, 2020 | Replies (11)Comment receiving replies
Good morning @mamab1223. I moved your discussion to the Brain Tumor group so that you can meet other Connect members sharing about brain tumors. @db also has central neurocytoma but hasn't posted for quite some time on Connect. I'm hoping s/he might return to talk with you.
@cynaburst @rossam @dmedina71 @parker80138 @amiceman will you join me in welcoming Amy to our group?
Amy, your sister might wish to consider Mayo Clinic for a second opinion. Experts at the Mayo Clinic can help you navigate your healthcare journey, answer your questions and guide you through the treatment plan. When you call at any of our 3 campuses, you will be offered an appointment within 48 hours http://mayocl.in/1mtmR63 Be sure to mention the Brain Tumor 48-access program.
Replies to "Good morning @mamab1223. I moved your discussion to the Brain Tumor group so that you can..."
Fabulous, Amy! Glad to hear things are moving forward. Keep us posted.
Thank you. Right now we are just waiting to find someone to figure things<br>out. Went yesterday to oncologist who would of done the gamma knife and she<br>had no records to compare. Very surprised how unprepared. The neurologist<br>is saying they are lesions n the neurosurgeon us saying they are brain<br>tumors. The oncologist says she doesn't know and now we have to wait till<br>next Monday for tumor board to look at it. What a joke. Wasting precious<br>days if this is tumors. Hopefully mayo clinic will get cd and get us<br>answers ASAP.<br><br>
Hello @mamab1223 I am Scott Phillips. I am sorry to hear what your sister (and you and the family) are experiencing. My wife had brain cancer for 14 years. At the outset, she too received conflicting information, what we viewed as somewhat strange diagnoses, and more. Her first medical work was in New Mexico (worthless). Next it was in Chicago. We insisted on a second opinion after Chicago and picked the Mayo Clinic in Rochester, MN. They finally were able to tell us what she was dealing with, medical options, and doctors who were fully prepared, excellently trained, and far more familiar with her tumor type than any of the others elsewhere.
As her primary caregiver during her journey, I can say the doctors at Mayo also were sure to include me in her care plans very well.
I wish you the best and will say prayers for your sister.
Scott
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Thank you. My parents are over nighting her cd today I think. They had to<br>pick up more yesterday.<br><br>