2me@2me Yes, transition IS difficult and I too am thankful I have found a place here to get advice and suggestions that we need during this journey that we are all going through. For the first couple of years I felt that Tom and I were the only ones going through what we were going through and then I found this group... and what a relief it was to see that we are NOT alone in this.!!!! It just comes at different times and stages. Now that I look back I was saying too much about things, cuz he wouldn't/couldn't understand and then he'd get upset or frustrated or agitated so then I backed off on those conversations and just give him little bits of info and that has worked out much better for us. It was a difficult transition because we always had great conversations, whether significant or otherwise and I miss those cuz I have to think if i'm making the right decision. My husband also has aphasia so that makes its more difficult cuz he can't express his feelings or say what he wants to without it being frustrating for both of us, And what worked maybe a couple months ago isn't working this time, and so yes, transition is difficult but i keep telling myself that I love this man with my entire being and will do anything to make it easier for both of us, but mainly for him. So don't give up and come here when you need to. I live in a somewhat remote/rural area so getting to in-person support groups is difficult because there's nothing real local and I have to travel at least 30-45 minutes away , so i am glad this support group is here. 🙂
It's taken me 3 years ( Tom is 63) to realize that i need to take time for myself and do things by myself and that has been hard because we did alot together and I miss him terribly so yes, transition IS difficult.
Big big hugs to you!!! I know you're doing the best you can and yes we'll make mistakes on the way but just think of your loved one and what they must going through and as long as we're here for them for whatever they need,
we'll get through this... at least that's what i believe deep down in my heart because I love Tom with my entire being and will walk 1000 miles for the love of my life.
Thinking positive thoughts for you!!!