Hi I can't believe I got a response. Thank you so much. After awhile you<br>start to feel like no one wants to help.<br>So, yes she has had multiple surgeries for the other tumors. We were told<br>five years ago she was maxed out on radiation treatment and the tumor in<br>right ventricle was too dangerous to remove. So they have been watching it.<br>It has been stable for five years. She was also diagnosed with MS, same<br>time she was diagnosed with first tumor in 2001. She had a flare up<br>supposedly with the MS 2 weeks ago. She went early for MRI bc of the flare<br>up. She was experiencing paralysis on side of mouth n numbness in fingers<br>and legs. They put her on iv steroid for 4 days I think n now she is<br>finishing the oral steroid but still not completely back to normal.<br>MS Dr says she has 2 more lesions.<br>Neurologist says she has two new tumors approx .34 in size.<br>Treatment suggested is Gammaknife radiation.<br>I'm confused bc I thought she couldn't have anymore and that's why we were<br>watching the 4 cm tumor in right ventricle.<br>Dr's say this is not normal for Central neurocytoma, could it be possible.<br>None of this is what they think? We have had top docs from Jefferson n<br>Hopkins all give different answers through years. She has MS, she doesn't<br>have MS, She should have surgery she shouldn't. She should never get any<br>more radiation now she should.<br>What do we do? Anywhere or anyone specialize in these tumors that act like<br>this?<br>Truly appreciate the response.<br>Amy<br><br>

This sounds like it's been quite a long road and I'm sorry that you've had such conflicting answers. Unfortunately, I am not a doctor and cannot provide advice about the best course of action for your sister. However, I am tagging @lal2 and @cheriroberts who have written about MS symptoms in the past. I'm hoping they may be able to weigh in or discuss their experiences with MS.

Again, because I am not a doctor I can't speak to the recommendations they've given you, but I did find this information on Gammaknife radiation, where it is noted that it's "generally less risky than traditional neurosurgery," which could potentially be one of the reasons the doctor suggested it. http://www.mayoclinic.org/tests-procedures/brain-stereotactic-radiosurgery/basics/risks/prc-20014760

I'm also not sure where you are located, but I was able to find a Mayo Clinic doctor in Rochester who interested in gammaknife: http://www.mayoclinic.org/biographies/garces-yolanda-i-m-d/bio-20053452