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Is anybody dealing with an angiosarcoma?

Sarcoma | Last Active: Nov 16 10:34am | Replies (63)
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@muenchen1945

2 month of Paklitaxel didn’t work - went on to Doxorubicin which I could not tolerate after 4 infusions. Now I am on immunotherapy with Novilumab and Cabometyx (oral) which is making me very sick, felt much better with only the infusion.
Anyone on the same meds?

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Replies to "2 month of Paklitaxel didn’t work - went on to Doxorubicin which I could not tolerate..."
Colleen Young, Connect Director | @colleenyoung | Jul 18 11:07am

Hi @muenchen1945,
I moved your post to this existing discussion so you can read the previous posts and get connected by replying to the group.
- Is anybody dealing with an angiosarcoma? https://connect.mayoclinic.org/discussion/angiosarcoma/

I’m tagging fellow members @grizz20 @crackerjack @mermaid7272 @jbeck7406 @bogeybogey @chuckp @twinsisty1 @posi9 @mulkey518, who have experience with angiosarcoma either as a patient or caregiver. Perhaps someone has experience with immunotherapy like nivolumab (Opdivo) in combination with cabozantinib (Cabometyx).

Muenchen, how long have you been on the new regimen? How often do you get it?

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