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How do I handle the ups and downs of PMR? So many questions.
Polymyalgia Rheumatica (PMR) | Last Active: Jul 9 6:30pm | Replies (20)Comment receiving replies
Hello,
Thankyou for your reply. It’s extremely helpful. I am sorry your Rhuematologist fobbed it off as a flare. The fact you felt worse on MTX and then better once off is proof. Had liver function tests been done? If not I am surprised that at least your lab work was not checked given MTX potential liver toxicity. The last thing any of us want is to feel worse than we already do, due to side effects from another medication. I am still seeking expert advice and research from patients who had a successful course of MTX.
Thank you so much!
Replies to "Hello, Thankyou for your reply. It’s extremely helpful. I am sorry your Rhuematologist fobbed it off..."
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The Methotrexate helped me initially. I was at 8 mg prednisone, couldn't go lower, and the MTX made me feel like I no longer had PMR. I tapered down to 5 mg fairly easily. My doctor was pleased with my progress, told me to stay on 5 mg for 6 months. As time went on PMR symptoms increased. I had to strictly limit activity to keep the pain down. After 5 months I had a bad PMR flare. My liver enzymes also stayed elevated while I was on MTX and I had to get off it. I was glad because I also never felt quite right while on it, just kind of foggy. 6 mg is the highest I've had to go since I took MTX so I think it helped long term. A mixed report from me!