I relate. I was diagnosed with Neuro-Cognitive Disorder, NCD, last August. I think it was called MCI, mild cognitive impairment, from an earlier version of the DSM. The silence from my doctors is like a wall. They do not even want to discuss going forward. My PCP just shrugged his shoulders and said "Nothing we can do". It's unbelievable.
While I live amid my NCD now, it struck me last week to query the internet about who should be addressing this with me. The answer was a neurologist. I have a neurologist from an earlier stroke that I've seen for neuropathy. I checked their websites and yes, they do treat MCI and related dementia disorders. I've made an appointment for August and I'll see how that goes. I had to get to this point on my own. It's a lack of supporting infrastructure the medical-industrial complex has yet to put in place. Follow the money. If people aren't insured for long term disability, there aren't any dollars to chase to keep us out of those facilities when or if it turns to full dementia or ALS.