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Lichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: 4 days ago | Replies (323)Comment receiving replies
I am so happy to find this group. I have been Clobetasol for years it works ok but I still have issues. There are three types of lichen, sclerosis, oral lichen, planus, and just plain lichen.. and I have all three.
It is very painful the lichen sclerosus, as well as the oral lichen planus. I keep hoping they find a cure for this or a better treatment.
Thank you for your input all of you.
Replies to "I am so happy to find this group. I have been Clobetasol for years it works..."
Hi! In addition to the information you have provided, there is another type of Lichen Planus not mentioned.
It is called "Esophageal Lichen Planus.". This is extremely rare. There are approximately, less than 50 people in the Country that have this. I am one of those patients! Unfortunately!!!
My esophagus is trying to close. My immune system is attacking the mucus membranes in my body. I have had to go under anesthesia twice this year so the doctor can try to stretch my esophagus a little bit.
They're not able to stretch it much, due to the risk of tearing it. Things get stuck in my esophagus and other problems.
I guess I'm at a very high risk for Esophageal Cancer.
I also have Oral Lichen Planus and Lichen Planus on my skin.
I don't have Lichen Sclerosis yet. It sounds miserable! I'm sorry you're suffering with this.❤️
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@minnesota10 - welcome to my world (and others’)! I too have lichen sclerosis and lichen planus. I also use Taro Clobetasol ointment for lichen sclerosis, and Lyderm gel for oral lichen planus. I used both daily for seven days and now use only when I have flare ups.