← Return to Time to Castrate Resistance: Anyone remained castrate sensitive 5+ yrs

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@wooldridgec

Thank you Kevin,

I have had Genomic testing 2x and there were no genetic markers found. I am de novo metastatic stage 4. I was diagnosed on my Birthday 7/27/2022. The Cancer spread to the bone only (spin, pelvis, ribs). I was started on Casodex first and radiation (10 cycles to the spin) and 5 additional cycles to the ribs. After 30 days I was put on Eligard shots every 3 months) along with Nubeqa. I immediately started chemotherapy and completed 10 cycles (Docetaxel 3 weeks apart). I have very few side effects from the chemo other than extreme fatigue. Radiation was absolutely the worst and very difficult to endure. To date, I remain castrate sensitive with my PSA < 0.100. My oncologist says I have beaten the odds up to this point. So, I am castrate sensitive 2 years now and I will be checked again in 3 months. My treatment plan was patterned after the ARSENS study. But what I am learning is that no matter what, every man responds differently to treatment.

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Replies to "Thank you Kevin, I have had Genomic testing 2x and there were no genetic markers found...."

What a journey, impressive, your willingness to undertake the treatment!

I just got my labs back yesterday, PSA .01 and T 328.

I'll take those results after 12 months on Orgovyx and SBRT