← Return to Lichen Sclerosus: Any other women dealing with this disease?

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@roch

@brandysparks

Thank you for all your valuable information, I have a recheck in Sept and will read up on disease before appt to make sure I know what questions to ask. Mine is still at a treat with Clobetasol cream stage but it is spreading.

The last time I was in, the gyn provider took pictures so can do comparisons. Awkward but necessary. No different then if had skin condition somewhere else on body that needed to be monitored.

My advice to all women, no matter what age, continue to have pelvic exams. Mine was not diagnosed early because my PCP had stopped doing pelvic exams. I started having symptoms and then PCP still missed. I did my own self-refer to gyn and then it was diagnosed.

Thanks again for research.

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Replies to "@brandysparks Thank you for all your valuable information, I have a recheck in Sept and will..."

@roch - You are most welcome. Please do reular OBGYN visits. anyway.

I've been using Clobetasol propionate 0.05% for years, and I used what was recommended before it came along. And here I am at 67, after 40+ years of following this LS condition. And I am getting these lesions.

If I recall what I've read correctly, of those with LS, about 9% can get to this precancerous stage that I am in. From there, I don't recall what % can get to the cancerous stage, which I am most certainly trying and hoping to avoid.

Be well.