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Feelings when tapering: My journey

Polymyalgia Rheumatica (PMR) | Last Active: Nov 13 10:21am | Replies (57)

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@tiateacake

I realised that day I had to give them at least 4 days to be able just to pop in and pick them up. I know what you mean about sick people, we have loads in this town with Covid at the moment but the weather is pretty awful so dog walking was bliss as no one out. I did wonder about wearing a mask in the winter flu time.

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Replies to "I realised that day I had to give them at least 4 days to be able..."

I can tell you aren't in the USA so I don't really know how it works there. My only comment is that the quantity of prednisone tablets I received was never a precise amount. Most of the time I had a stockpile of every mg tablet available. My doctor wanted to make sure I wouldn't ever run out of prednisone. I would let my doctor know what tablets I needed.

I will never forget the time when I was having a rough time because of another condition that wasn't PMR. I messaged my doctor that I thought I would need to take 100 mg of Prednisone for a few days. I added that if I took that much I would quickly run out of prednisone. I included the reason for my request. My doctor immediately called me back. He knew my conditions and that I wouldn't ever exaggerate my pain. My doctor simply asked me if I was sure 100 mg for a few days would be enough. He also said if I needed to be seen to let him know. He called the prescription in and I picked it up the same day. The pharmacist asked me if I was aware of the side effects and I said, "yes."

My tapering instructions were never precise. Sometimes the label on the bottle of prednisone said "taper as instructed." That was fine most of the time. I wasn't ever given any precise instructions about how to taper unless I asked. For PMR, my rheumatologist would set goals for me but not detailed instructions. She always worried about how much Prednisone I was taking. She wasn't ever judgmental and seemed to understand I was trying to taper off albeit without much success.