← Return to Feelings when tapering: My journey
DiscussionFeelings when tapering: My journey
Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (57)Comment receiving replies
Replies to "I realised that day I had to give them at least 4 days to be able..."
I can tell you aren't in the USA so I don't really know how it works there. My only comment is that the quantity of prednisone tablets I received was never a precise amount. Most of the time I had a stockpile of every mg tablet available. My doctor wanted to make sure I wouldn't ever run out of prednisone. I would let my doctor know what tablets I needed.
I will never forget the time when I was having a rough time because of another condition that wasn't PMR. I messaged my doctor that I thought I would need to take 100 mg of Prednisone for a few days. I added that if I took that much I would quickly run out of prednisone. I included the reason for my request. My doctor immediately called me back. He knew my conditions and that I wouldn't ever exaggerate my pain. My doctor simply asked me if I was sure 100 mg for a few days would be enough. He also said if I needed to be seen to let him know. He called the prescription in and I picked it up the same day. The pharmacist asked me if I was aware of the side effects and I said, "yes."
My tapering instructions were never precise. Sometimes the label on the bottle of prednisone said "taper as instructed." That was fine most of the time. I wasn't ever given any precise instructions about how to taper unless I asked. For PMR, my rheumatologist would set goals for me but not detailed instructions. She always worried about how much Prednisone I was taking. She wasn't ever judgmental and seemed to understand I was trying to taper off albeit without much success.