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@vmcd

With the first ones I didn’t know they were fractures - I was in extreme pain and tried over the counter meds and resting - called my Primary Care’s office and unfortunately we thought it was muscle strain (I was picking up a bag of books). When the pain subsided after a few weeks (the meds didn’t help much at all.) I had another fracture after bending down to take a dish out of the dishwasher. Again, not realizing it was a fracture. The third happened while just sitting - crazy. So my neurologist ordered a scan after a routine visit when I complained about my pain - that’s when the first few were discovered. The reason I was on steroids to begin with was due to having been diagnosed with necrotizing autoimmune myopathy. 7 months into IVIg I started with 3 days of IV steroids (1,000 each) then 60mgs of prednisone tapering off when improvement was being made. (At that time also began cell cept and a few other meds) I think I was at 20mg with the first fracture. It was quite the blow because I was finally gaining weight back and getting stronger.

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@vmcd

Wow, it sounds like you've been through it! Your fracture situation sounds very much like ours (I say ours, it's my husband's). The only reason we knew about the first fracture was because they did an x-ray in 2/2024 and had one from 5/2023 to compare to. They discovered the first new fracture. Then a couple months ago they took another x-ray due to back pain and discovered two new fractures. Like you, one from emptying the dishwasher. Crazy you had one by sitting! My husband's physical therapist stresses the importance of not slouching when sitting (like on a couch or comfy chair) and putting your feet up if you might doze off.

Prednisone is a miracle drug for many people with a downside of nasty side effects. But the benefit definitely outweighed the risks as I'm sure they did in your case. Now we deal with the fallout. I think it's important to keep the most positive attitude we can have because our minds and bodies are connected. Which can be hard. I do a breathing exercise that is relaxing and that relieves stress. I can actually reduce my blood pressure doing this for a few moments. Here's the breathing exercise: Purse your lips if it helps. Close your lips and inhale through your nose for a count of four. Hold your breath for a count of seven. Exhale completely through your mouth making a whoosh sound for a count of eight. I hold to a count of 6 and release to a count of 7. But that's me.

Good luck in this journey back to health!