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Feelings when tapering: My journey
Polymyalgia Rheumatica (PMR) | Last Active: Nov 13 10:21am | Replies (57)Comment receiving replies
Thank you for the very helpful replies to my question about tapering yesterday. Later in the day I noticed my left leg was feeling weak so obviously pelvis was not happy. When I picked up my last lot of Prednisone I was given 56 1mg extra. I even drove to see the person who arranged the prescription which gets made up at a chemist near me. He went off to see the practice nurse I had seen at the start. He returned and still did not tell me if they had made a mistake or if the extra were just in case I needed them. So frustrating. This morning I opened one of the 1mg box so I could add the 1mg to my 10mg dose. I will phone the Dr surgery later and inform them that is what I am doing. You never know I may even get a return phone call. Anyway here is hoping that this puts the PMR back to sleep.
Replies to "Thank you for the very helpful replies to my question about tapering yesterday. Later in the..."
Can you ring the pharmacy to prepare your scripts before you go in? My local chemist tells me by phone what scripts they have left for me and gets them ready in 20-30 minutes. I take my time to go in and am straight in and out of the chemist in a few minutes. Nothing worse than hanging around potentially sick people waiting for scripts. I always wear my mask so they know I'm serious about avoiding catching anything and getting out fast.
@tiateacake I moved your discussion to your original discussion on tapering so that members could see your thank you message, https://connect.mayoclinic.org/discussion/feelings-when-tapering/.
I was given a load of 1mg extra one month, I took them back to the surgery and questioned it only to be told it was fine. I had to make a phone call appointment to speak to the nurse and I had to wait 2 weeks for that. But she did admit she had made a mistake and they have come in useful when I use the pill cutter on the last week before taper. And my NHS app says I don’t need a new prescription so obviously that has gone wrong, the extras definitely came in handy then.
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The 1mg tablets you got may not be extra. You will need to have them on hand to prepare to reduce below 10, whether you take 9.5mg (1x5mg + 4x1mg + 1/2x1mg) or 9mg (1x5mg + 4x1mg), so you need a range of tablets on hand. Or did they think you had reduced too much at once by reducing 2.5mg in one go... has your doctor clarified that yet?