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Should I take Big 3 + inhaled ARIKAYCE

MAC & Bronchiectasis | Last Active: Aug 5 8:40am | Replies (144)

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@lshawster

Did anyone have serious side effects from ARIKAYCE. Reading through the list from the drugs website is frightening! I was just told today that I need to start it.

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Replies to "Did anyone have serious side effects from ARIKAYCE. Reading through the list from the drugs website..."

Good morning, I think it is case by case. Some people have worse side effects than others. But only 1-10% have the serious side effects. We can only take good care of ourselves and try to maintain the healthy weight to fight with it. It is also important to do baseline tests for hearing and eyes and do monthly or quarterly check up. As said, the more you read, the scarier you are. 🙂 Whenever there is a problem, there is a solution. Good luck to all of us!! Lets fight together!!!

Helen is 100% correct. It is worth the opportunity to rid yourself of Mac. If the side effects become unmanageable, tell your Dr and stop.