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@seniormed

If you and your rheumatologist are not a good fit it can affect your progress
if you need long term management. Keep in mind there can be shortages of
specialists in some areas and long waits for referrals. Do you have a primary
physician to confer with about other options? Do you have access to your
visit summaries and labs.
I lost my first rheumatologist to family needs and her job change. My second
rheum gaslighted me when she was stuck on her diagnosis and disregarded
my history and symptoms. The third young woman rheumatologist has been
wonderful and very thorough and communicative. All three were well trained.
I’m thinking you may continue to find support here with other patients’
experiences.

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I found that the hours of research online for PMR various sites was worth it. I have not had much help on handling the flare up other than blood tests and medication. In the early stages he didn't seem to have heard of the dietary restrictions at all. Now I have no rheumatologist at all as our hospital closed their rheumatology department leaving their patients no help closer than 35 miles away. Fortunately I am beginning to come out of the after effects of both prednisone and the flare up and have the learnings from several rehab sessions to call on. But not a situation I am happy with. I thank the heavens for having found this site as it's been so much help and encouragement.