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Radiation or not after surgery for endometrial cancer?
Gynecologic Cancers | Last Active: Sep 4 10:59am | Replies (94)Comment receiving replies
Hi Helen, what was the symptoms that gave you a clue that something was wrong with you in 2021, 2 yrs after your hysterectomy?
I had total hysterectomy in July 2022, all went well, no other cells found. I get ck ups every 6 months with my gyno-onco surgeon. So far, thank God I have not noticed anything that makes us believe something is wrong. I did ask get for a ct-scan for my next ck up visit thus coming Aug 2024 just for extra security. I didn't get any treatment or therapy after my surgery. My Onco said that the staging & the grade level and the fact that everything else was negative all pointed out to a good prognosis and it was best for me if they just watch it closely to avoid using unnecessary drugs and causing damage to my body etc etc etc.
But, I do fear the big C coming back to haunt me, mainly because nothing else was done to it to kill any random cells (if any) after surgery. I even dreamed (twice) of me spotting and lots of blood coming out, it is scary 😨 even in a dream. I trust my Surgeon Dr, I went to a good hospital in NYC, she is caring, knowledgeable, smart. Still cancer cells are so malicious that they can turn up anywhere and start causing pain and suffering when you least expect it. In your experience what can you tell me to educate me even more on this reality that changed my life forever.
Any tips or facts about our type of cancer that you can share will be greatly appreciated.
I too had grade 1.
Ps. So far, I try hard to stay calm, busy and focus, I feel great, travel, have fun, enjoy my family & friends, act and look young for my age (68) lol, I help those that need me, I go to church, etc.
I'm forever grateful to God, my doctor & my family for everything..... thanks, irma
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@ihndz Irma, I did not have any symptoms associated with the recurrence of my cancer (endometroid adenocarcinoma, FIGO Grade 1, Stage 1). My nurse practitioner found a very tiny polylp on my vaginal cuff cancer surveillance appointment (there had been nothing there 6 months prior). She removed it and sent it to pathology for biopsy. It came back positive for the same cancer I was diagnosed with two years earlier. After conferring with the gynoncologists in her department (Mayo Clinic) she ordered a PET/MR from head to pelvis. It showed nothing suspicious. My nurse practitioner was surprised with this finding as were the doctors thinking that there must have been a tumor forming at, behind, or near the vaginal cuff. With the results of the pathology report on the polyp and the negative results from the PET/MR I was referred to radiation oncology. I then had both external pelvic and internal (brachytherapy). That was two years ago and since then I've been returning every four months for cancer surveillance and there has been no evidence of disease.
Like you, it has been difficult at times for me not to dwell on a recurrence or a new cancer. I try to let those thoughts go.
If you are like me and keep up your cancer surveillance appointments the likelihood is that if anything changes or shows up it will be caught very early. That's what happened with me and for that I'm very grateful.
I do what you do. Travel, enjoy family and friends and I get compliments that I don't look my age (72). I do everything I can to stay healthy but the not-looking-my-age is down to genetics. My father and his family were the same. Do you get those compliments too?