Connect
← Return to STOP! Don't do this if you have osteoporosis
Discussion
STOP! Don't do this if you have osteoporosis
Osteoporosis & Bone Health | Last Active: Nov 12 11:04am | Replies (255)Comment receiving replies
Thank you for your list!!
I agree with getting a great doctor and not settling. It took us a while and making changes with doctors we didn't feel were competent. When they say they take care of patients with osteoporosis and have never heard of Forteo or Evenity it's time for a new doctor. In my opinion. The best doctor we found for osteoporosis is an endocrinologist. And we have a rheumatologist for his other conditions. We also have a physical therapist to help us navigate the osteoporosis. It's my husband who has it, not me.
I've never called the pharmaceutical companies but that's a good idea.
Two websites our doctors agree provide good, accurate information are Mayo Clinic and Cleveland Clinic. There are other good ones, some from other countries I've found useful.
I find lots and lots of good information online. You just have to be sure it's from a good reliable source. My schedule doesn't allow me much time to go to the library but that's another good place to go. I've bought many books off Amazon too.
Your attitude will go a long way to help you heal. Sometimes it's hard and it's depressing but the most important thing is to keep a positive outlook. I believe in the mind-body connection.
And like you I am a firm believer in sharing what you learn. I love this site for that.
Replies to "@loriesco Thank you for your list!! I agree with getting a great doctor and not settling...."
The Mayo Clinic and the Cleveland Clinic are excellent online sources for osteoporosis info. The Royal Osteoporosis Society (UK) is another great site for information.
I've read so many books on osteoporosis and one of the best (besides Great Bones by Dr. McCormick and Dr. Lani No Nonsense Bone Guide) is the Mayo Clinic on Osteoporosis. It's a relatively small book but the information is incredibly valuable and best of all, it had a chapter for living with a fracture - no other book addressed this. I got it from our library (I think I've read almost every book out there on OP! Lol). But the Mayo Clinic book really impressed me.
Another tip for living with a fracture is using a metal pooper scooper (bought on Amazon) to replace a dustpan after sweeping. Funny enough, the Mayo Clinic book also states to do not bend to use a dustpan. I really like that the book provided a lot of practical info after fracturing.
That said, I love the tips you provide and this is an excellent thread you started. When I broke my L3 in January, I had to figure out what I could and couldn't do on my own (before I discovered this wonderful site). I avoid potholes, I don't lift anything heavy, I don't put the fitted sheet on the bed (my husband does that, I adjust my side mirrors to observe oncoming traffic when entering a highway instead of twisting and I no longer bend to get things from my lower kitchen cabinets (I rearranged my kitchen to put things at waist level or higher).
Good luck with calling the pharma folks about their products. I called the makers of Xarelto last week to find out if my 10mg scrip for Factor 5 genetic clotting would work with turmeric, taurine, theanine and berberine and finally got through to a person "who can help you." She suggested I ask my doctor. I bother my wonderful hematologist all the time with these annoying questions and I was trying to spare her. I asked this adviser why my doctor would know more about interactions with their drug than they, the manufacturers and she couldn't answer.
About 6 years ago I lost an eye after glaucoma surgery to implant a tube. I had been told by two hematologists that I would need to be off Xarelto for two days, but I was nervous, so I asked the company itself - and they said follow the doctor's advice. I stayed off it for four days. After the surgery the eyewall collapsed and it was only much later I got to the retina specialist who told me all these new-fangled clotting drugs are terrible for eye surgery, and the blood vessels in the eye are both very tiny and weak. I had looked and looked into research and had never found anything about that. He said you need to be off them for 10 days. When I asked why he knew that, he said retina people work with a lot of older people, many of whom are on these drugs, and he's seen it happen to them. I also found out later that Factor 5 makes a particularly hard clot that is really difficult to dissolve. Pharma is not your helpful ally.
Connect
Yes, I like this forum too! Best of luck for you and your spouse!