@loriesco
I saw your response to @healthseeker77 about calcium and Vit D.
My husband's endocrinologist suggest getting 600 mg calcium in the morning, preferably from food, and another 600 mg in the evening again preferably from food. If you can't get enough from food either in the morning or afternoon, take a calcium supplement to make up the difference (example: if you eat 300 mg calcium in the morning, then take another 300 mg of calcium supplement.)
She also said it's important to get 1,000 mg Vit D. That the Vit D was also important.
His labs check out OK for calcium. So I'm confused about your comments that healthseeker77 is possibly doing something dangerous, and is wasting his/her time taking Vit D. Is this for people with kidney issues?
I'm very sorry to hear what happened to your neck during surgery. That must have been such a shock.
My husband had his first DEXA this year (he has steroid-induced osteoporosis, it's very bad, from taking prednisone for over a year for two medical conditions. The prednisone was his only option for both PMR and GCA (polymyalgia rheumatica and giant cell arteritis.) The DEXA showed the osteoporosis. Are you saying you had DEXA's and they didn't show your neck issue?
Having said that, I had my DEXA scan this year also and mine turned out that my bone density is great. I also had an x-ray taken of my neck because of some hand pain and I have cervical stenosis that I didn't know I had. So we can have spine issues and still have a good DEXA scan result. You're right that we can have some good bones and some bad.
My recommendation for people with osteoporosis is seeing an endocrinologist and also a physical therapist. Ask lots of questions including what you can and can't do under your own personal circumstances. Before we asked no one told us to limit anything (before we found our endocrinologist.) Once we found her, we started asking lots of questions - especially after it was discovered he had two new fractures. Now we have a good road map of what he should and should not be doing until these fractures are more stable. We work with her and the physical therapist (virtually - he's not gone to have anyone do physical therapy with him. We are using the physical therapist right now mostly for reading x-rays and helping guide us on what is and isn't safe for him to do in his current condition.) We will continue to follow-up with them both.
Hello @isabelle7 !
I do not think you need to worry about getting extra calcium from food! No worries there! But I would caution about taking calcium supplements if your husbands blood test are calcium normal. Having too much calcium can have undesirable side effects. The same with vitamin D! I was low on vitamin D when I finished menopause - as are most women and most people as they age need more vitamin (I take 5000 iu every day now - but I also am tested to make sure my vitamin d levels are midrange normal. If your vitamin d is too high it works AGAINST the bone medicines. I have used this group to figure out what tests I need to ask the endocrine dr for. He didn’t think I needed any baseline testing but I asked my primary doctor and she agreed with me. So if you are going to put supplements into your body make sure you get periodic labs to make sure all is humming along in harmony. I also look up what it means if I am borderline low or high on test results. It ALWAYS means something if one is on the borderline. The doctors always dismiss borderline testing as if so how it’s “normal” but I tell them normal is near the MIDDLE! not at the ends. 😊
As far as the DEXA- correct— they don’t always tell the truth. I never had any indication my bones weren’t strong until cervical spine surgery and my C5 fell apart in their hands last year. No one has even said I HAVE osteoporosis in the past year, but I am on this bone medicine now. All I know is I have degenerative disc condition and osteoarthritis. It is the right time of life to have deteriorating bones so being on this medicine is valuable. Even if the DEXA isn’t accurate, they can still use it to see if my density is changing over time. But you have to stay with the same equipment because the calibration needs to be consistent. And wouldn’t you know it but my insurance company is no longer going to contract with my DEXA provider next month! But I will stay with them and pay a small copay next year.
I guess we just learn a lot as we go! I am sorry to hear about your husband’s steroid side effects! I’ve had to rely on steroid injections but always take a half dose over the years and only periodic use.
I think menopause did me in and I might check out getting back on bio identical HRT . That might help maintain a strong body. Good luck and stay strong! Lori