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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 15 hours ago | Replies (845)

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@colleenyoung

@laurenmca3, chemotherapy can play havoc on the heart. Have you heard of cardio-oncology?

Cardio-oncology offers expertise in addressing heart problems, potential or current issues during cancer treatments. At Mayo Clinic for example, the Cardio-Oncology Clinic (https://www.mayoclinic.org/departments-centers/cardio-oncology-clinic/overview/ovc-20442193) evaluates people prior to cancer treatment and patients who have experienced side effects due their treatment.

Do you have both cancer specialist and cariologists involved in your care? How are you doing on immunotherapy?

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Replies to "@laurenmca3, chemotherapy can play havoc on the heart. Have you heard of cardio-oncology? Cardio-oncology offers expertise..."

Yes, I have a team including an oncologist, cardiologist, specialist in cardiology, palatine care, gastroenterologist, and now a kidney specialist since my kidneys are not in great shape due to heart meds. I receive immunotherapy (Keytruda) via port every six weeks

The infusion alone worked well - I had energy, stamina and felt st times almost normal. As soon as I had to add the oral meds I started feeling sick, no energy, dizzy, balance issues, lost a lot of weight in one week - informed my team and will take myself off the oral meds.