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STOP! Don't do this if you have osteoporosis

Osteoporosis & Bone Health | Last Active: Nov 12 11:04am | Replies (255)
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@loriesco

Here's my comment to add:
1) Be sure you have a GREAT doctor. You might have to search and try different branches of a department but keep going until you get a trustworthy doctor that is informed.
2) Never put all your trust into a doctor without studying up and making notes to ask questions.
3) If one doctor isn't available enough GET TWO.
4) Call the pharmaceutical companies and have them answer your questions about medications
5) Don't dismiss intuitions
6) Keep an open mind - some things you think are causal turn out not to be
7) get books from the library and read about your diseases
8) stay active even if it is gentle chair yoga and walking; standing is particularly helpful
9) keep a good attitude when possible. Some days are down days, but find a creative outlet you can always depend on to lift your spirits
10) share what you learn!

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Replies to "Here's my comment to add: 1) Be sure you have a GREAT doctor. You might have..."
isabelle7 | @isabelle7 | Jul 8 8:36pm

@loriesco

Thank you for your list!!

I agree with getting a great doctor and not settling. It took us a while and making changes with doctors we didn't feel were competent. When they say they take care of patients with osteoporosis and have never heard of Forteo or Evenity it's time for a new doctor. In my opinion. The best doctor we found for osteoporosis is an endocrinologist. And we have a rheumatologist for his other conditions. We also have a physical therapist to help us navigate the osteoporosis. It's my husband who has it, not me.

I've never called the pharmaceutical companies but that's a good idea.

Two websites our doctors agree provide good, accurate information are Mayo Clinic and Cleveland Clinic. There are other good ones, some from other countries I've found useful.

I find lots and lots of good information online. You just have to be sure it's from a good reliable source. My schedule doesn't allow me much time to go to the library but that's another good place to go. I've bought many books off Amazon too.

Your attitude will go a long way to help you heal. Sometimes it's hard and it's depressing but the most important thing is to keep a positive outlook. I believe in the mind-body connection.

And like you I am a firm believer in sharing what you learn. I love this site for that.

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