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@isabelle7

@vmcd

Wow!! 12 fractures in 9 months is a lot. I’ve been fretting over my husband having three over the past few months. Do you know what caused you to have so many? Did your doctor explain the changes you’d need to make to help prevent from getting them? My husband got his last one bending down to empty the dishwasher. Now the doctor says he can’t do any bending and can’t lift anything over 5 pounds. Until she knows these fractures are stable.

I agree that they should start bone density testing right away for people on steroids for over three months. I’ve read anything over 2.5 mg per day for three months can cause bone loss. My husband has been on over a year of high dose prednisone, up to 80 mg per day. We’re tapering with the help of Actemra for a condition called giant cell arteritis. He’s now down to 17.5. The side effects have been awful but the drug likely saved his life.

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Replies to "@vmcd Wow!! 12 fractures in 9 months is a lot. I’ve been fretting over my husband..."

With the first ones I didn’t know they were fractures - I was in extreme pain and tried over the counter meds and resting - called my Primary Care’s office and unfortunately we thought it was muscle strain (I was picking up a bag of books). When the pain subsided after a few weeks (the meds didn’t help much at all.) I had another fracture after bending down to take a dish out of the dishwasher. Again, not realizing it was a fracture. The third happened while just sitting - crazy. So my neurologist ordered a scan after a routine visit when I complained about my pain - that’s when the first few were discovered. The reason I was on steroids to begin with was due to having been diagnosed with necrotizing autoimmune myopathy. 7 months into IVIg I started with 3 days of IV steroids (1,000 each) then 60mgs of prednisone tapering off when improvement was being made. (At that time also began cell cept and a few other meds) I think I was at 20mg with the first fracture. It was quite the blow because I was finally gaining weight back and getting stronger.