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@kathyheidt

Thank you. Did you ever get used to it and in general, did the tightness, weight feeling, numbness ever go away or subside?
So frustrated

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Replies to "Thank you. Did you ever get used to it and in general, did the tightness, weight..."

Hi
Not used to it really. Just sometimes if I’m busy it’s not as present. No the tightness, numbness and weight feeling has not changed. I also have hearing loss on that side and constant tinnitus.

It’s difficult because you try to be grateful for being alive but quality of life is diminished. Radiation is the gift that keeps on giving. I think the second treatment to the same area, after recurrence) is why it’s worse this time.

Good days mood wise for the most part. But there are some days it feels overwhelmingly. I am hopeful that with time I’ll embrace/accept the new me.

The one thing I miss really deeply is smiling rather than looking like I’m grimacing.🤣

Hang in there. I’m much better mentally than o was a year ago so figure that will continue to happen.