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@shawnvidali56

My son just got that diagnosis…he is in the hospital and because they could not get in to
Put stents in his bile ducts that are clogged, they put a drain directly in .

They hope to be able to put stent in tomorrow (2nd attempt) … what is his prognosis treatment and as it progresses what will his quality of life be like?

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Replies to "My son just got that diagnosis...he is in the hospital and because they could not get..."

@shawnvidali56, I want to welcome you to Mayo Connect. My first message to you is that your son is where he needs to be right now, in the hospital where he can be observed and treated as needed. When the bile ducts are damaged, bile can back up in your liver and sometimes lead to irreversible scarring of liver tissue (cirrhosis). I had a stent once when my bile ducts were becoming clogged from a different liver disease.

Primary Biliary Cholangitis (PBC), is a chronic disease Currently there is no cure. By working together with the doctor, medications are available to help slow the progression of the disease and prevent complications. Sometimes if the medications and lifestyle do not stop the progression of the disease, a transplant could be necessary. My girlfriend was around 65 when she was diagnosed and she had no complications from it.

Here is information about Primary biliary cholangitis. You will find information about diagnosis, treatment, and healthy lifestyles, as wall as possible symptoms and outcomes.
https://www.mayoclinic.org/diseases-conditions/primary-biliary-cholangitis-pbc/symptoms-causes/syc-20376874
shawnvidali56, I hope that your son has a good night. And that the stent placement goes well tomorrow.
I had a different bile duct disease, and I want you to know that I am here and ready to help you in any way that I can from my experience.
What kind of symptoms did your son have leading up to the PBC diagnosis and hospitalization?

@shawnvidali56, It has been a while since I heard from you and I am concerned. Were the doctors were successful in the 2nd attempt to put in a stent. What have they told you about any future treatment?

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