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Foot neuropathy

Neuropathy | Last Active: Jul 19 2:02pm | Replies (30)

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@dbeshears1

Hi-
As Ed said, we’re all different in how we respond to various therapies for PN. Most of us have some degree of differences in our symptoms and types of PN. I have been on Gabapentin for almost 8 years. It has not “cured” my PN, nor has improved (or worsened) my balance, gait, or strength. What is HAS done for me is help the extreme & once intolerable cold & heat in my hands and feet. Without Gabapentin, I couldn’t function because of the pain the temperature feelings caused; whether inside or outside, with heavy gloves & socks or with being completely naked & hot and unable to sweat, I was miserable. Gabapentin has helped reduce that to where it’s just a minor nuisance
now.

I unfortunately have pain with my PN, an internal nerve pain, as if in my bones from the knees down & elbows down. Gabapentin has helped that tremendously too. Things trigger extra pain sometimes, like over-use, being exposed to high temperatures, and some things I haven’t figured out yet trigger it. But generally it’s very manageable with Gabapentin and doesn’t interfere with the activities I can do since I’ve been living with PN. I’m fortunate I’ve had no side effects with it, with the exception of maybe a little brain fog, but I can’t prove that my aging doesn’t have a role in that! I’ve learned over these 8 years to stay on schedule taking the medication. Sometimes when unusual pain or freezing sets in, I realize I’d missed a dose and that was the trigger. It may take a day to get the level in my body restored to “normal” again, so I think it’s important to keep the level in my bloodstream maintained.

As Ed said, we all react differently to it, but for me and knowing how I had a couple of months of complete helplessness and suffering when I had this very sudden onset of PN, I can’t imagine how I could have made it without Gabapentin. I have heard other contributors talk about similar drugs that have helped them - it’s often trial & error with the help of your doctor. I wish you the best!

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Replies to "Hi- As Ed said, we’re all different in how we respond to various therapies for PN...."

Thank you for your insights
I would like to of course like yourself and millions of others
treat and solve the origin of the
neuropathy rather than use
gabapentin..
With me I am very confused about the origins of it..
Thanks again

Hi Debbie ~
I found myself nodding "yes" to almost every word of your post. The exception is that Pregabalin works for me (side effects immediately with Gabapentin) and that I've been taking it for "only" 5 years, along with Tramadol. I pray that over time its effectiveness doesn't diminish, because like you, I don't know how I would ever be able to handle it otherwise.
Hope summer is going well for you and that you're staying cool!
Barb