I am day 89 past transplant. Crazy. Coming out of the hospital on April 29th, I had no idea how the day-to-day would go. I was given guidance here on this site from Lori and others who shared. Lori lays it all out for the new people waking up to knowing they have MDS or leukemia and wanting to know what will happen. I got to hear about my pre-testing to qualify for my BMT and the hospital and the process many transplant departments use for a bone marrow transplant. All the info was more relevant as it was from someone who walked through the procedure themselves. The booklet I received and the nurse and social worker I talked to had talked from a procedural perspective. Here I got feelings. What would likely take place and how to take it a day at a time. Real experiences like fatigue, nausea and more. To always keep the nurses and the morning visiting Dr. posted. They cannot take action if they do not know.
Just for right know, I have had good results, I am being weaned off a drug I took twice a day since transplant. Also, the other drug I got day 5- 100 has 11 days to go. That 2nd drug used to only be given when a patient had GVHD. Now it is given day 5-100. I was in a research study that gave me the other pill. Both pills to lessen the chance of GVHD. My transplant nurse recently told me that not everyone gets GVHD. My Dr. says they might want me to get something, so my body can fight it off.
Mysisster and brother have been caring for my cats the 95 days i have been out of my house. I picked up my car a couple weeks ago and saw my cat looked like she had fleas. Scratching. It came to pass that she is deeply infested. One flea shot did not work completely as she had mats all across her tummy. OH MY! I tried to work on it, but realized i could cut her. Tomorrow at 9:30 my sister is taking her to the vet. My girl Hazel needs to be shaved. I am thinking and hoping the vet clears the fleas off and trims her, but not entirely. I do have a 2nd cat who also will need the vet likely, but not till i get home. I will ask my sister to help me take him. I do hope my Hazel is going to be ok. She is 12.5 years.
What i know for sure is, i could not have had my transplant without my friend letting me stay with her. I also needed by brother and sister to do the best they could with my house and 2 gatos. I feel blessed to be good today, and hopefully my 100-day Bone Marrow Biopsy will have the results we want. The donor remaining a close to 100% as possible in my marrow.
BMT lets us look at life with the possibility there is a lot more still to come.