It sounds like you are already in good a good place with both a liver specialist and GI. I am not familiar with the stage 2 label. It sounds like your doctors are on top of your diagnosis and treatment. And that is good for you! Like you, many people do not realize that they have a liver condition until it acts up or is discovered by accident. Mine was discovered when my doctor examined in routine labs. And then it took a while to find an accurate diagnosis. Your fears and questions are an exact echo of what I experienced. My advice is to gather information: Mayo Clinic, American Liver Foundation, and other respected sources like Cleveland Clinic, Johns Hopkins are some that I recommend. Make a list of questions and take them to your doctor for answers. Do you have a spouse or a friend who can go to your appointments with you? I have heard that people with PBC who take Ursodiol have had good results with it. That is what my girlfriend takes.
How often do you see your doctor for follow up? Rosemary