← Return to Hyperbaric Oxygen Therapy (HBOT) for Peripheral Neuropathy

Discussion

Hyperbaric Oxygen Therapy (HBOT) for Peripheral Neuropathy

Neuropathy | Last Active: Jul 15 12:25am | Replies (11)

Comment receiving replies
@seathink

I was still in active treatment so it bounced between my oncologist - ordering the brain/spine MRI, and then when that showed negative for a tumor and positive for nerve activity on the brachial plexus I went to a neurologist. Even though the nerve damage was confirmed she was very hesitant to actually diagnosis it as radiation -induced BPN.

My radiologist then took point and coordinated the treatment, all the medicine and the HBOT.

The farther you are from radiation, the harder it is, I think to get a diagnosis, since there are so many other possibilities.

I did radiation March-May of 2021, and then started the weakness/hand failure in December 2021. It was after my big reconstruction surgery in Sept so with the lifting restrictions I didn't notice the weakness right away. And at PT we were initially happy about the loss of volume on the cancer side because then no lymphoma.

Once we realized the problem my oncologist moved swiftly because I am still in the window of reoccurrence, and anything is seem right away because it might be a tumor. And then after that, probably another cancer related problem, at this point - I am 42 now and pretty healthy otherwise.

Because hyperbaric is considered experimental for radiation induced BP neuropathy my radiologist's first request was denied by insurance, so she had to resubmit with help from the hyperbaric team, but that worked.

This was all at UCLA, so our chamber was like two mini-subs hooked together and you took treatment with people.
I now live in a smaller city (about 250,000 people), but the chamber here is also a room.

Definitely go with a medical chamber with nurses on hand, not a "spa"-type set up.

Jump to this post


Replies to "I was still in active treatment so it bounced between my oncologist - ordering the brain/spine..."

Thank you again (over and over)! You are only the 2nd person we have found who even knows the term RIBP, but that is exactly what my husband and I think I have. It’s been 12 years now since I first felt numb/tingling in my fingertips (and 22 years since radiation) so I am doubtful it can be reversed for me, but how gratifying to know I’m not alone in this. I miss writing by hand the most. Even living with pain everyday, I tell myself there are worse things in life…and there are. I appreciate you sharing!