Recently diagnosed with Gastroparesis

I have gastroparesis but mild form, Dr put me on donperidone,and that really helps I was scared to eat when I first got diagnosed, 3 months ago, but now I try different foods, and see how it goes, and most of the time I feel fine, I got something, that helps with nausea, but I have used maybe 3 pills, so diet is key if there's a food that caused trigger don't eat it anymore. Feeding tube is for very severe cases is what my Dr said.

Red meat is a killer for me. Mine is more advanced had it for over 10 years. I was told by my GI doctor and neurologist it is the first step in neuropathy. Red meat takes longer to digest it will sit on my stomach for 24 hours or longer if I don’t end up throwing it up first.

I was diagnosed four yrs ago, but had symptoms much longer than that from a surgery for my hiatal hernia…. portions really matter & for me I eat frequently & small…. I don’t mix meat with other foods…. No fresh veggies or fruits…. If I do they are really cooked or baked…. Chicken, fish, eggs, or ground meats…. I actually can eat small amounts of steak occasionally, but not regularly…..mostly I nibble some of my husband’s….. Biggest help has been walking after eating…..life saver…. Cannot take any meds per RX. except Zofran will settle my stomach & helps if bloating gets uncomfortable….
Something also that helps is I fast most days & only drink coffee or tea for breakfast until about noon or so…. Usually there is plenty of food left in my stomach from day before….. I try not to eat past 6:30 pm, but do have plenty of fluids….. another thing is I don’t drink fluids while eating a meal…. I fill up too fast….. I did a lot of research on line & my own listening to my body…. My gastroenterologist was no help just dismissed me with if you can’t tolerate the meds, then I can’t help you…. From Mayo Clinic I found out that I’m lactose intolerant & that helped, but their dietitian was no help!!!! I knew more than she did through all my research & what I could tolerate from my own eating practices….. write it down & any symptoms that you did or didn’t have…. I know it helped me that I’m a retired RN, but when you’re the patient it gets real…. Remember though you are in control & work what works for you. Walking has been the real help & small portions….. Big Big….Family Support is My Biggest Support…. Good Luck….

@hyrulewarrior - this thread may help you with your upcoming appointment at Mayo

Hi,
The not having fluids while trying to eat is an obvious yet amazing tip - or should be obvious! 😂 I'm always so thirsty and dehydrated that it will take serious willpower, but I know this will help!
Thank you!
Draginfli 🧚‍♀️

I actually drink 24/7 & always have a bottle of water with me even by the bed…. I drink bottled water because I had a stem cell transplant at Mayo Clinic for a rare blood disorder & lived at the time with well water & just got hooked on bottled water…. Mayo Clinic wanted to make sure of no contamination from the personal well water…. The only time I’m not drinking is with meals…. Hope This Helps!

Hello I was diagnose on 17 of July 2024, two weeks ago, My doctor recommended donperidone too. How do you get it? From what I know it is sold out of US. Any help would be appreciated.

Hello @001sarahsantana and welcome to Mayo Connect. The medication you mentioned is medication that needs to be prescribed by a doctor. Here is some information about it from the Drugs.com website,
https://www.drugs.com/domperidone.html
Did your doctor give you a prescription for this medication? Do you live outside of the U.S.?

I live in U.S, he recommended it but did not give me a prescription is there a way to buy it in US with a prescription? I believe I would have to file a form to the US FDA to be approved for what I know. But I wonder if there is a drugstore already doing it.

Thanks,

Sarah

Since it is a medication that your doctor suggested, @001sarahsantana, it might be wise to contact the doctor's office and ask if they know how to obtain this medication. Perhaps they can give you some guidance,

I would enjoy hearing from you again. Will you post again and let me know how you are doing?