I've had a similar problems to Champs due to heavy pelvic radiation more than 34 years ago. My problems have ranged from intestinal blockages to diarrhea and as of this past February, I now have FECAL INCONTINENCE (a true nightmare).
Over the years, I have continued to try to find ways to help myself (e.g., alternative doctors, exercise, counselling, stool tests, special diets, supplements, googling for latest studies/info, etc). I expect I must continue to investigate and try new ways to help myself for the rest of my life (I am 77.)
I just learned about PELVIC FLOOR THERAPY. Maybe, I needed this for many years? Maybe this will be an answer? Maybe it won't help? Its worth a try.
No doctor has ever mentioned pelvic floor therapy to me before --- in fact, I never heard or read about it before other than for women who have had children. Thanks to a nurse practitioner (who didn't just think I was lucky to still be alive), Pelvic Floor Therapy was suggested for my FECAL INCONTINENCE and gave me a script so that the therpay is covered via my health insurance plan. I've had around 4 sessions with many more yet to come. I am hopeful (as usual) but the availability of certified pelvic floor therapist is very limited and getting an appointment has been difficult.
Pelvic Floor Therapy may benefit BOTH men and women for incontinence --- be it urinary, fecal or both. Few wish to talk about these problems.
I would like to hear from others about how they are trying to help themselves their long term effects of pelvic radiation/radiotherapy experienced 20 or more years ago and from those with fecal incontinence or other intestinal problems that are limiting their life,
Thank you!