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Leg Weakness and Mobility Issues

Autoimmune Diseases | Last Active: Jul 7 3:40pm | Replies (58)

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@slkanowitz

I had symptoms of CIDP for years and had normal EMGS x 3. It wasn’t until the 4th EMG that nerve damage showed up. A spinal tap sometimes shows high protein but not always. There are special autoantibodies against myelin and other nerve cell proteins that may be done on serum but only the neuromuscular specialists order those. You need a NM specialist who will take a stand based on your signs and symptoms even if all tests are normal. That is what is meant by a “clinical “ diagnosis and someone who has seen it enough times won’t require proof. I wish everyone going through this luck and strength.

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Replies to "I had symptoms of CIDP for years and had normal EMGS x 3. It wasn’t until..."

Thank you for sharing. I am going to schedule an appointment with a neuromuscular dr, but my rheum told me the ones she'd recommend are already booked til fall. I may just have to wait til then, feel like it's impossible to get appointments without waiting months.