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Aspergillus after Bronchiectasis/MAC

MAC & Bronchiectasis | Last Active: Jul 8 8:42am | Replies (22)
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@rstel7272

Unfortunately, I have a permanent fair sized cavity. A fungal ball has developed in it and will caused lung bleeding. Voriconazole has been keeping the ball at bay so I can avoid a lobectomy. Side effects not too bad, sun sensitive skin, thin outer skin layer and tingly toes. Dr wanted me to switch to Cresemba but with Medicare part d my copay is over $1000 per month.

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Replies to "Unfortunately, I have a permanent fair sized cavity. A fungal ball has developed in it and..."
liangni1 | @liangni1 | Jul 6 8:22pm

I have a school mate who is same age as me. He had lobectomy 3 years ago. I don’t know the reason of surgery but he recovered very well. Maybe lobectomy can help you too. I think you should consult your doctor. After 18 month Voriconazole treatment the fungus has been confined to the ball,this may be the best time to do it.

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