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@johnbishop

Welcome @andirae, It's not uncommon to have a lot of questions being fairly new to PMR and trying to taper off of prednisone. You are definitely not alone with the questions and the best thing you can do is learn as much as you can about the condition and how to manage the symptoms. I've had PMR twice and both times started at 20 mg prednisone. My first time took 3 and half years to taper off and I was in remission for about 6 years. The second time with PMR took me 1 and half years to taper off in the fall of 2018. So far it hasn't reared it's ugly head again but you never know. I did make some lifestyle changes which I think have helped but it remains to be seen. While you wait for others to respond, it might be helpful to read through a few other discussions on managing PMR symptoms and tapering off. Here's a search results link to the discussions and comments - https://connect.mayoclinic.org/search/?search=pmr+managing+symptoms.

It might help to keep a daily log with your symptoms when you get up in the morning plus your dosage of prednisone for the day. Do you keep a daily log?

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Replies to "Welcome @andirae, It's not uncommon to have a lot of questions being fairly new to PMR..."

Thank you for replying.
I don’t yet keep a log but did see somewhere in others discussions about that. Plan to start tomorrow.
Hoping for guidance and encouragement. At least I don’t feel as alone.

In my experience, the main lifestyle change needed was diet. Keep a log of what you eat and adjust accordingly. Suggest no red meat (although someone here suggested grain-fed might be ok); no white flour, very limited sugar, very limited alcohol- like 1” of wine! Works for me and I’ve tapered from 20 mg to 8 in 4 months.
I take dose at 4 am so when I get up, I’m not in pain for the day. If any pain, Tylenol works well. Don’t take an NSAID-(anti inflammatory like Advil) . Doesn’t mix with prednisone. This regime has been trial and error for me. Good luck.