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If you suspect Lupus or MCTD, be sure

Autoimmune Diseases | Last Active: Jul 11, 2024 | Replies (22)

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@lowrymal50

Thank you! This new version of Covid was worse then the last 2 I got . I have never been so sick. I have long covid from the first 2 times and now i have COVID again. I went to the hospital bc my daughter was having a baby and the baby actually went to the NICU. We stayed in a nice hotel and I started feeling bad. I just had a scratchy throat so I decided to test myself. I was not expecting it to be positive. We had to leave the next day. I am on day 11 and I still feel awful. Now my husband has it. He never caught it from me the last 2 times. So just GYI, sanitize ur hands and wear a mask. I did all of that and still got it. The coughing is the worst! Bodyaches, soar throat, omg it's horrible. I really think I have lupus after all the testing. The first dr told me I had an brain as a 80year old bc i have numerous lesions on my brain?? It looked like MS. WTH? So for a year I was getting infusions every 3 weeks! My neurologist retired and I went to his colleague. He said the exact opposite He said my brain is fine and it Small fiber neuropathy. Jezzzz. I told him I had covid and I am seeing like floaters in eyes. He said go to urgent care and get a head scan? No empathy. Noone believes me when I tell them.what I am feeling. It's NOT SFN!! He said well I don't treat long covid. So...I don't know what to do anymore

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Replies to "Thank you! This new version of Covid was worse then the last 2 I got ...."

@lowrymal50 I am so sorry about the covid! At least you were at a hotel and not at your daughter’s! And you have reminded me to put a mask in the car and in my purse!
You might check out your community to see if there is a covid clinic. then you can ask, do they have a long-covid clinic. Or you can google ‘long covid clinics’ in your town.
What is your isolation plan if either you or your husband gets covid again?

Go to Mayo if you can

My husband has had Covid 3 times now. Lasts so long. First time he was sick for months no energy at all. I feel bad for you.I ended up with a referral to Mayo Clinic…For autoimmune. Have they looked at Maybe POTS or sjogrens disease? It took almost 10 years for my diagnosis