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Leg Weakness and Mobility Issues
Autoimmune Diseases | Last Active: Jul 7, 2024 | Replies (58)Comment receiving replies
Did they diagnose you with CIDP? If so, curious what tests did you undergo to get that diagnosis. I have already done so many tests like imaging MRIs, tons of bloodwork, emg/nerve conduction, and all is normal as if I have nothing wrong.
I need to schedule an appointment for neuromuscular, likely through UCI, but they are booked until fall which is so far away.
Replies to "Did they diagnose you with CIDP? If so, curious what tests did you undergo to get..."
I was diagnosed by EMG/nerve conduction test plus a spinal tap is required. Spinal tap gave me a severe migraine.
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Yes CIDP and most likely from the Covid Vaccine! UCLA nueromuscular is fast and great! They are honest about the fact that they see a lot more of it. Mine started a few days after the Vaccine , i started falling down and lost strength in my left knee, which would just give out and Down I went... It started in my left leg and they thought it was a spine problem . After fusing S-1
L-5 and L-4 and L-3 it just got worse over the next few months. At first local (Ventura CA.) docs thought it was GBS and started me on IVIG which helped some < 44 infusions for 4 hours each) Dr. Trikamji. put me on the rituxan (rituximub) and I am able to walk now with a cane.