1. < Prostate Cancer

Radiation with or without ADT

Posted by rad62 @rad62, Mar 4, 2023

After RARP April 2019, pT3a pNO cNO VO LO Pn1 RO Gleason 4+5 =9

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PSA List (PSA-List-edit-04.03.2023.pdf)

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rad62 | @rad62 | Mar 6, 2023

@kujhawk1978
Thank you so much,this information is invaluable and gives me more confidence in my decision.

REPLY
rad62 | @rad62 | Jul 5 3:38am

Update on my situation,
I had 25 sessions of pelvic radiotherapy and an additional 3 sessions of sbrt targeted to the lymphnode highlighted by the psma scan and 6 months of concurrent eligard .
I finished radiotherapy early September, PSA January 0.01 but of course I still had low testosterone, PSA June 0.01 and testosterone back up to regular levels so for the moment things seem controlled.
I must say the journey has been quite difficult,more than happy at the clinical results but have been dealing with some nasty fallout.
I've had a build up of lymphatic fluid due to prior prostatectomy and recent RT, I have almost constant pain in my leg and seem to have developed some kind of neuropathy which can be quite painful, some days are better than others and I'm hoping that things will improve as my body recovers from the treatment and the hormone therapy.
It was made an even more difficult time as 3 days after I finished my treatment my younger brother was admitted to a palliative care unit and after spending a week by his side he sadly passed away.
In the aftermath of this I became quite depressed and started developing all the other problems neuropathy e.t.c.
For anyone in a similar situation to myself I wouldn't wait until the PSA number rises ,once the pet psma had identified the infected lymph node I received the RT and 6 month concurrent ADT with PSA about 0.3.
I have some other issues which I'm navigating but staying positive that in time these will subside,I will probably not be the same person as before the treatment but thankful that for now I'm in remission, and with determination I can recuperate most of my physical and mental wellbeing.
Wishing all fellow travellers on this road a positive journey.
Andrew Green

REPLY
2 replies
VancouverIslandHiker | @vancouverislandhiker | Jul 6 10:41am
In reply to @rad62 "Update on my situation, I had 25 sessions of pelvic radiotherapy and an additional 3 sessions..." + (show)
@rad62

Update on my situation,
I had 25 sessions of pelvic radiotherapy and an additional 3 sessions of sbrt targeted to the lymphnode highlighted by the psma scan and 6 months of concurrent eligard .
I finished radiotherapy early September, PSA January 0.01 but of course I still had low testosterone, PSA June 0.01 and testosterone back up to regular levels so for the moment things seem controlled.
I must say the journey has been quite difficult,more than happy at the clinical results but have been dealing with some nasty fallout.
I've had a build up of lymphatic fluid due to prior prostatectomy and recent RT, I have almost constant pain in my leg and seem to have developed some kind of neuropathy which can be quite painful, some days are better than others and I'm hoping that things will improve as my body recovers from the treatment and the hormone therapy.
It was made an even more difficult time as 3 days after I finished my treatment my younger brother was admitted to a palliative care unit and after spending a week by his side he sadly passed away.
In the aftermath of this I became quite depressed and started developing all the other problems neuropathy e.t.c.
For anyone in a similar situation to myself I wouldn't wait until the PSA number rises ,once the pet psma had identified the infected lymph node I received the RT and 6 month concurrent ADT with PSA about 0.3.
I have some other issues which I'm navigating but staying positive that in time these will subside,I will probably not be the same person as before the treatment but thankful that for now I'm in remission, and with determination I can recuperate most of my physical and mental wellbeing.
Wishing all fellow travellers on this road a positive journey.
Andrew Green

Jump to this post

Andrew , keep positive . Try and go for walks , hike , do as much as you can outside . Get involved with Prostate suport groups - you have a wealth of experience , some guys would benefit from your thoughts . You have the talent to reflect and help ! Keep at it brother ! Your friend network good ? God Bless Brother. James - Vancouver Island

REPLY
dandl48 Dave | @dandl48 | Jul 6 12:33pm

I would put this question to your R.O.. He/she must have a preference and since you are putting your treatment into his/her hands, go with what is suggested. If he says to get an ADT treatment and you don't, I would find a R.O. that tells you that ADT isn't needed. Just my opinion.

REPLY
ecurb | @ecurb | Jul 6 1:50pm
In reply to @rad62 "Update on my situation, I had 25 sessions of pelvic radiotherapy and an additional 3 sessions..." + (show)
@rad62

Update on my situation,
I had 25 sessions of pelvic radiotherapy and an additional 3 sessions of sbrt targeted to the lymphnode highlighted by the psma scan and 6 months of concurrent eligard .
I finished radiotherapy early September, PSA January 0.01 but of course I still had low testosterone, PSA June 0.01 and testosterone back up to regular levels so for the moment things seem controlled.
I must say the journey has been quite difficult,more than happy at the clinical results but have been dealing with some nasty fallout.
I've had a build up of lymphatic fluid due to prior prostatectomy and recent RT, I have almost constant pain in my leg and seem to have developed some kind of neuropathy which can be quite painful, some days are better than others and I'm hoping that things will improve as my body recovers from the treatment and the hormone therapy.
It was made an even more difficult time as 3 days after I finished my treatment my younger brother was admitted to a palliative care unit and after spending a week by his side he sadly passed away.
In the aftermath of this I became quite depressed and started developing all the other problems neuropathy e.t.c.
For anyone in a similar situation to myself I wouldn't wait until the PSA number rises ,once the pet psma had identified the infected lymph node I received the RT and 6 month concurrent ADT with PSA about 0.3.
I have some other issues which I'm navigating but staying positive that in time these will subside,I will probably not be the same person as before the treatment but thankful that for now I'm in remission, and with determination I can recuperate most of my physical and mental wellbeing.
Wishing all fellow travellers on this road a positive journey.
Andrew Green

Jump to this post

You could try alpha lipoic acid- a capsule a day for neuropathy. I take it all the time. You took eligard, I took Trelstar in the butt3x/ month. Going on 18 months now. I took Zytiga for lymph nodes. 18 months. Makes me fatigued daily- so it’s nap time around 1 pm. My psa is like yours < 0.01. My testosterone is low as it’s HOT FLASH City on a daily basis. I ll be glad to get off the hormone therapy come November , to see what happens to PSA/TESTOSTERONE. I m sorry you lost your brother- that would definitely affect your immune system. Hand in there like I do at 75 years of age. BRUCE

REPLY
clandeboye1 | @clandeboye1 | Jul 6 4:27pm

Does anyone have experience with LDR Brachytherapy for Gleason Score 6 Low Risk Cancer -- Without EBRT or ADT .
I am considering this as opposed to AS .

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