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← Return to Tiredness triggering an atonic seizure Vs sudden falling asleep
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Tiredness triggering an atonic seizure Vs sudden falling asleep
Epilepsy & Seizures | Last Active: Jul 8 1:18pm | Replies (16)Comment receiving replies
Chris, thank you so much for this response. The hospital has given me no info except my lactic acid levels were a bit off and I would think that was from the seizure. Somehow they thought I had a migraine which must have triggered the seizure but that is incorrect. I did not have a migraine until I became conscious in the ER where they injected 1,000 mg Keppra. The neuro has not returned my messages so there has been no med changed, etc. Lacosimide is only the second med I have been on since first seizure in 2022. And it was changed to lacosimide 12/2022. It was increased from 100mgx2 daily first of Dec 2022 to 100 mg morning and 150 mg night at the end of Dec 2922 due to another seizure. Neuro then diagnosed as complex migraines in 9/2023 and 12/2023. (I don’t think he knows what they are when unwitnessed to be honest). 4/2024 I was taken to hospital for complex migraine (appeared as a stroke) and had a grand mal while having MRI. Lacosimide changed to 150mgx2. Now, taken to ER 6/28/2024 for witnessed grand mal and haven’t heard back from neuro. I guess he will change med again. My kids are wanting me to see an epileptologist and closest is at Vanderbilt in Nashville, about 3+ hours. I’m going to try to get a response Monday from the neuro. Not sure what to do. I feel guilty for letting this depress me.
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@baa a Very Good Morning to You!
I hope you had a pleasant weekend.
Ackward that your neuro has not yet returned your messages in such situation. Perhaps the messages got lost in his or her mailbox? Have you tried to call his or her office and leave a message with his or her assistant?
Finding the right doctor is something that can take some time. It needs sometimes persistance and patience as it was with me. But do not give up.
Have you considered having first a video call appointment with this epileptologist? This might speed up the whole process and make things easier for you and your family. I did that two times, in 2019 and 2020. One was with a neurologist from another state. Seeing her personally would require flying 2 two hours to her city. The second was with an clinic/epilepsy center in the States. As you know, I live in São Paulo city, Brazil. Thankfully, today with the technology we have, we can share exams through internet. At this American clinic, I could uploaded all my exams on its platform. Rarely, I have been examined at a medical appointment for epilepsy in which I was present in person. The medical appointments are mostly based on exams and talks.
Please do not let all that make you feel guilty and depressed. It is not your fault!!! Have you considered having the support of a neuropsychologist? I started with my neuropsychologist 6 months after being diagnosed with epilepsy in 2019. I was feeling terrible at that time. She has been of great help to me in various manners, helping me in the acceptance of my epilepsy, giving me much support in difficult times of my treatment and when I was depressed and many other things. In 2019, my sessions were all in person, but with Covid times, they turned online and I keep it this way as I do not drive anymore, making my life much easier. And it works very well.
Sending you my good vibrations and wishing you a peaceful week!
Chris (@santosha)