Can you share just exactly where the block was done? I've had CRPS of left ankle/foot (which has crept up the leg, making for constant burning nerve pain of the appendage) for about 2 1/2 yrs now... "officially" diagnosed by neurologist to whom I turned after doctors in another practice were clueless and useless. He referred me to PM doctor who wanted to inject into my lumbar spine, telling me that it would well stop the pain in the appendage especially in the traumatized and damaged ankle/foot. I said no thank you, returned to my neurologist who supported my decision. Found a highly recommended PM doctor not too far from us, and he fit no push got yhr spine ijrvyion, trdprvyinh my grit go vsudnih gutyhrt tolrmd in yhs strs z9dlipprf divd, odyrostyhtiyid, nrtbr iddurdz0. Ordered PT for the CRPS, stating that PT (effectively done) is the first line of treatment for CRPS. My super excellent podiatrist agreed. Underwne nearly 20 weeks of PT with a great therapist, and the pain in foot/ankle subsided from a constant 7 to 9 (out of 10) to a constant PL 6 --- so much more tolerable, but the leg up to above the knee is still symptomatic. I stopped PT. $40 weekly co-pays became a factor, and besides, couldn't just keep going for PT to avoid the higher pain levels....continued the stretching and foot exercises at home, but CRPS is NEVER going to just disappear. There definitely is no cure, as stated in medical journals and voiced by my neurologist, podiatrist, and PM doctor. Podiatrist put together a formula (for a pain cream) that was filled at a compounding pharmacy out of state. A bit expensive but SO WORTH IT. A metered pumpful rubbed and massaged around the entire ankle/foot does relieve the bite o the pain. I cannot take pain meds (high sensitive, reactive). Elevating the leg, applying heating pa, and an Aleve as needed all hel. I am quite aware of the burning nerve pain since it is 24/7...it is what it is, and I'm grateful for days when I manage an hour standing so I can do errands, etc., and bake/cook. I've gained a bit of weight since I am not as active/mobile as I was prior to the nasty fall that inflicted the damages to my left leg (torn meniscus and damaged tendons in my knee), my entire left arm and shoulder (but those have "healed" thanks to tons of PT and OT, as well as help from incredible orthopedist).
I'm happy for you that you were able to do the sympathetic block and that it was effective. I have found ways around life with CRPS. Not happy about it, but it beats just being resentful for how it has impacted my life. And yes, I have way too many other more serious medical issues that require my attention. What most affected me was being told by several medical professionals (who DID have knowledge about the condition) that there is no cure, and that indeed it could "creep" into other areas of may body --- and it has. But I have not allowed the condition to get in the way of living as best a life as possible, along with my supportive husband.
Cannot decipher the sentences after you said
“ I found a PM doctor- “
go back & read how spell check scrambled your words.
I had CRPS & Top doctors were stumped. The only event was a steroid shot in the ankle & my foot and ankle turned blue & mottled with a white giraffe like pattern all over & it was ON FIRE but felt cold!
After a few sympathetic blocks every 6 months next to the lumbar spine, the shocks, jolts & burning subsided forever!
That foot & ankle is still hypersensitive to touch, even like a small pebble in my shoe can cause burning sharp pain!
These sympathetic blocks were not available at Mayo in Jacksonville, so I went to Rochester Mayo.
In regard to the PM “shots” they could have been steroid shots & not a sympathetic block.
Steroid shots cause weight gain, affect your adrenal glands, high blood pressure & can cause damage to your body. Those can help a few days to a few weeks.
The Sympathetic Block lasted half a year!
So 2x a year to get full relief was a good send. Mayo said the TEST for sympathetically maintained pain, is also the treatment!
It worked in minutes!
My foot turned pink, warm & no shocks!
I did all the treatments you tried, none worked to stop the sudden burning shocks except the Sym Block.
(For others reading this, sympathetically maintained pain, just means your fight or flight response to an injury never shuts OFF!”
It wants you to get off that injured area, to prevent further damage.
“It continues well after the initial injury has healed.”
It does NOT mean, you want sympathy or it’s in your head. Thats why physical therapy doesn’t last & some PM shots often don’t last & can even create the sympathetic system to increase pain due to another jab with a needle into a very vascular area,
Anyway that’s what I learned about CRPS.
To me, it was worth the pilgrimage to Rochester to figure this out. They did.