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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 5 hours ago | Replies (202)
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@citychica

I’m frustrated, surgeon doesn’t believe the tumor is causing the vision problems in my left eye as the tumor is on the right and wants to do a wait and see if it grows in 3 months. Wants me to continue to see my eye doctors. I am seeing an eye doctor at UCLA in 11 days.

Also if they were to remove the tumor, because where it is near too many nerves, They wouldnt be able to remove all of it. Otherwise, they would treat with radiation which wouldn’t shrink it but stop growth.

I’m seeing another surgeon Monday so we will see what they say. I was told the meningioma is 3.6 cm long and 2.4 cm wide at its widest. Curious if I should go to Mayo.

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Replies to "I’m frustrated, surgeon doesn’t believe the tumor is causing the vision problems in my left eye..."
jasonl1012 | @jasonl1012 | Jul 6 9:37am

So is it by the pituitary gland? And pressing up on the optic nerve? That’s where mine is and I’ve had two opinions so far and going to Mayo in 10 days. I can let you know what they say, but so far all have said remove it. At 3 cm I’m surprised they wouldn’t. Definitely get another opinion at Mayo. It’s your health and you deserve it

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elisabeth007 | @elisabeth007 | Jul 6 2:24pm

My neuro-opthamologist at Bascom Palmer in Miami is the one who detected my meningioma. He has ordered every diagnostic test imaginable to determine the cause of my fluctuating vision loss. I also see a cornea specialist

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elisabeth007 | @elisabeth007 | Jul 6 2:26pm

If u wish, you can have a mayo brain tumor zoom appt. i did

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