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@mary612

Good morning Lori,
Thanks for the swallowing tips! He is already trying some of them. He has a swallow study scheduled for next week. His regular doc inaction so we saw a NP in clinic yesterday. All counts are stable and in the normal range. I will be giving magnesium IV every other day for the next week.
I will ask about the oral magnesium option you suggested. As of now they have prescribed oral magnesium stearate with protein that he hasn’t started yet.

It’s the dysphasia - coughing and swallowing issues, especially with more slippery liquids - that continues to be our biggest challenge every day. It’s hard enough to have an appetite but when he starts coughing because the liquid isn’t going straight down his throat, that brings on a gag reflex 🤦🏻‍♀️. Looking forward to getting the swallow study done and getting him help with this. Hope the healing of his throat tissue also improves it as well.

He hasn’t had any big energy days like a new puppy yet. He does get up and walk up to a mile every day so that’s been fairly steady. Today is day 24 so he’s still a newbie.

One day at a time.

Enjoy the weekend.

Mary

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Replies to "Good morning Lori, Thanks for the swallowing tips! He is already trying some of them. He..."

Hi Mary, it’s been a couple of weeks since we’ve chatted. I’m expecting there’s been some positive changes since then. How’s everything going?

Wow. Day24!!!! One day at a time works. Not all symptoms are the same every day. I hope i throat is better. Doctors and RNS will find a solution, but our tricky bodies sometimes do not cooperate.
Every step, as long as he gets up.
Good thought and prayers continue.