← Return to Tiredness triggering an atonic seizure Vs sudden falling asleep

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@santosha

@baa Good Morning
I am sorry to hear that! Keppra according to what I have heard from epilepsy groups, it the AED that people most complain about. But I also know some people who are doing well on it.
I went through a similar experience in 2019, when the doctor switched Tegretol (carbamazepine) for Trileptal (oxcarbazepine), having a tonic clonic seizure (I usually have focal/partial seizures). Right after the seizure, my husband phoned my neurologist at that time and he oriented him to take me to the hospital, even if the seizure was over. It was observed that my sodium levels were very very low, being the cause of this seizure. It was a side-effect from the medication Trileptal. The hospital has contacted my neurologist at that time. Based on this, my neurologist switched Trileptal for Vimpat.
Have the hospital given you perhaps an insight why this seizure has happened? It would be very important to talk to your doctor as soon as possible.
One thing that my current epileptologist has said to me some time ago and is quite important. You should take one action at a time and not multiple actions at once, otherwise we will not know what is working and not working. As you are switching medication at this moment, I believe it is not the best time to introduce a gluten-free diet. Otherwise, you might not know what is working, the medication, the gluten-free diet or both of them. So, give youself some months just taking this new medication and see what are the results before introducing a diet. When I introduced my gluten-free diet, I was already 8 months on the same medication. Perhaps you could discuss the time frame with your doctor, how long should you wait just taking Lacosamide before starting a gluten free diet. This way you will also be able to have some statistics about your seizure's frequency afterwards.
Wishing you as well a beautiful weekend. You all must be still in the 4th of July mood in the States :-)!
Chris (@santosha)

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Replies to "@baa Good Morning I am sorry to hear that! Keppra according to what I have heard..."

Chris, thank you so much for this response. The hospital has given me no info except my lactic acid levels were a bit off and I would think that was from the seizure. Somehow they thought I had a migraine which must have triggered the seizure but that is incorrect. I did not have a migraine until I became conscious in the ER where they injected 1,000 mg Keppra. The neuro has not returned my messages so there has been no med changed, etc. Lacosimide is only the second med I have been on since first seizure in 2022. And it was changed to lacosimide 12/2022. It was increased from 100mgx2 daily first of Dec 2022 to 100 mg morning and 150 mg night at the end of Dec 2922 due to another seizure. Neuro then diagnosed as complex migraines in 9/2023 and 12/2023. (I don’t think he knows what they are when unwitnessed to be honest). 4/2024 I was taken to hospital for complex migraine (appeared as a stroke) and had a grand mal while having MRI. Lacosimide changed to 150mgx2. Now, taken to ER 6/28/2024 for witnessed grand mal and haven’t heard back from neuro. I guess he will change med again. My kids are wanting me to see an epileptologist and closest is at Vanderbilt in Nashville, about 3+ hours. I’m going to try to get a response Monday from the neuro. Not sure what to do. I feel guilty for letting this depress me.