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Anyone have side effects after Lanreotide injection?
Neuroendocrine Tumors (NETs) | Last Active: Nov 2 6:47am | Replies (35)Comment receiving replies
My best to you. My husband did Folfox for 6 months. He had difficulty eating so several small meals/snacks daily is good. The nutritionist had him start drinking Fiji water as it has electrolytes and minerals more than others and that really helped but it is very expensive. This treatment did reduce the size of his tumors significantly but he stopped due to significant neuropathy. He had less side effects from CapTem but that stopped working for him. He has just finished the 4 cycle treatment of Lu 177 radiation treatments and is doing well.
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Thank you @bnjncrew. I truly appreciate you taking the time to give me this information. I have watched a lot of videos of people who have taken this and most talk about extreme sensitivity to cold anything, neuropathy and nausea. My sister has a well differentiated pancreatic neuroendocrine tumor Grade 3. May I please ask what your husband’s grade was? We had a video with her oncologist and he said that he if my sister didn’t start this chemo she would qualify for comfort care/hospice if she didn’t want treatment because there has been significant growth. All of this is a lot to try and understand. He said that without treatment she would have a range of about 6 months, more like 3-5 months. It was a very hard appointment. 😭