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DiscussionHas Prednisone/Actemra worked to completely heal GCA?
Polymyalgia Rheumatica (PMR) | Last Active: Jul 12 9:11am | Replies (12)Comment receiving replies
Replies to "@dadcue I’m glad to hear that. That must have been such a tough time. Those electrical..."
Trigeminal Neuralgia was dreadful. I didn't ever know when those flares would happen. The wind was one of my biggest fears. Being afraid to go outside whenever the wind was blowing was very stressful. Even worse was being caught outside when the wind picked up. Trying to escape from the wind was nearly impossible sometimes.
"Pain occurs in intermittent bursts that last anywhere from a few seconds to two minutes, becoming more and more frequent until the pain is almost continuous."
https://www.hopkinsmedicine.org/health/conditions-and-diseases/trigeminal-neuralgia
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Prednisone helped but I couldn't convince a neurologist that it helped. He said trigeminal neuralgia wasn't treated with Prednisone.
I really believe the stress from trigeminal neuralgia might have triggered PMR. I thought PMR was a blessing because suddenly I had a legitimate prescription for Prednisone that I could take all the time. Until PMR was diagnosed, I had to wait until the next uveitis flare when my ophthalmologist prescribed a massive dose of Prednisone.
The neurologist was probably right all along. Prednisone didn't solve the problem and never does in my opinion. The surgery I had for trigeminal neuralgia made it so it isn't much of a problem anymore.
I was able to decrease how much prednisone I took after the surgery for trigeminal neuralgia. However, I was still taking 10 -15 mg of Prednisone daily. Actemra allowed me to get off Prednisone completely.