← Return to CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

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@harley22

I will be starting Rituxan infusions in a few months with a new neurologist in a new state.
I have had IVIG in the past over an 8 mon period
It did not help me at all.
My new neurologist seems to think it will work for me.
I sure hope so as I’ve been dealing with this over past 11-12 yrs
Now it’s in my right hand, both feet are numb, balance is awful, and I have alot of other issues
My lips have been numb since the beginning

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Replies to "I will be starting Rituxan infusions in a few months with a new neurologist in a..."

@dklaus @harley22 Since both of you are dealing with the same issues I thought I would answer both of you together. Use of IVIG has not helped at all and now you would like to try rituxan. be prepared for the insurance companies to deny you at first. the cost is very high and insurance would like you to use cheaper ones first. That’s what happened to me and others on this site. I had rituxan in Feb and am scheduled again in Aug. I thought it was wonderful! I don’t have CIDP, so really can’t compare.
Do you think you could ask your doctor about IVIG and rituxan? Why they worked for a short time and then didn’t. Aand is there any clear evidence on rituxan?

My hands are numb! I understand what you are going through. I keep cutting them while cutting carrots and onions to look down. And blood everywhere. Then go to ER to get stitches. IVIG does not cure the neuropathy but it slows down the progression of the disease. According to the medical journal of neurology takes 8 months to one year for it to work. . You have to remain on it for life. If you go off of IVIG it can fast track your symptoms. I have heard of Rituxan being used to treat RA and Lupus and other diseases but not neuropathy. You are not the first person trying it for neuropathy it’s an off label use my understanding.