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Has Prednisone/Actemra worked to completely heal GCA?

Polymyalgia Rheumatica (PMR) | Last Active: Jul 12 9:11am | Replies (12)
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@isabelle7

@dadcue

Wow!!! You truly have been through it. Thanks for explaining all of this. I also don't know how you weren't diagnosed with GCA since the symptoms are so classic for it. Do you feel they misdiagnosed you?

I am just so sorry you had to go through all of this. My husband's doctor sounded like if it were needed, my husband could also remain on Actemra for the same reasons.

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Replies to "@dadcue Wow!!! You truly have been through it. Thanks for explaining all of this. I also..."
DadCue | @dadcue | Jul 5 7:59pm

No ... I think my doctors got it right and I never believed I had GCA. My doctors always ask me about symptoms of GCA even now. I think they were very vigilant and certain that I didn't have GCA.

One time my rheumatologist refused to see me when I showed up at my appointment with a red eye and foggy vision. She asked me if I knew how serious it could be. She called the ophthalmology department herself and said I needed to go there first.

My ophthalmologist was the first person I told about electrical headaches around my eye. He said it wasn't an eye problem and referred me to a neurologist.

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