← Return to Tiredness triggering an atonic seizure Vs sudden falling asleep

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@baa

Hi Chris. My grand Mal’s were two months apart (almost within a day) after increases with lacosimide, which is only the second med I have tried. Couldn’t take Keppra due to side effects even though it controlled seizures much better. I have not talked to the Dr since this last trip to hospital a week ago so don’t know what he wants to do. This last time, however, I did experience two freezing, staring auras earlier in the day so daughter spent the night and I wasn’t alone. For that I am thankful for.

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Replies to "Hi Chris. My grand Mal’s were two months apart (almost within a day) after increases with..."

@baa Good Morning
I am sorry to hear that! Keppra according to what I have heard from epilepsy groups, it the AED that people most complain about. But I also know some people who are doing well on it.
I went through a similar experience in 2019, when the doctor switched Tegretol (carbamazepine) for Trileptal (oxcarbazepine), having a tonic clonic seizure (I usually have focal/partial seizures). Right after the seizure, my husband phoned my neurologist at that time and he oriented him to take me to the hospital, even if the seizure was over. It was observed that my sodium levels were very very low, being the cause of this seizure. It was a side-effect from the medication Trileptal. The hospital has contacted my neurologist at that time. Based on this, my neurologist switched Trileptal for Vimpat.
Have the hospital given you perhaps an insight why this seizure has happened? It would be very important to talk to your doctor as soon as possible.
One thing that my current epileptologist has said to me some time ago and is quite important. You should take one action at a time and not multiple actions at once, otherwise we will not know what is working and not working. As you are switching medication at this moment, I believe it is not the best time to introduce a gluten-free diet. Otherwise, you might not know what is working, the medication, the gluten-free diet or both of them. So, give youself some months just taking this new medication and see what are the results before introducing a diet. When I introduced my gluten-free diet, I was already 8 months on the same medication. Perhaps you could discuss the time frame with your doctor, how long should you wait just taking Lacosamide before starting a gluten free diet. This way you will also be able to have some statistics about your seizure's frequency afterwards.
Wishing you as well a beautiful weekend. You all must be still in the 4th of July mood in the States :-)!
Chris (@santosha)