Alfred,
Have you ever considered that the symptoms could be cause from instability?
They did a decompression, but no fusion?
Usually, muscle spasms and tightness can indicate your muscles are working overtime in order to try and stabilize your cervical region.
I am certain I do have some instability. I have similar symptoms and more. Your neck can affect so many things, including dysautonomic dysfunction.
Have you ever had any accidents like motorvehicle, or others?
I am hypermobile (hymobile ehlers danlos) and have had some horse riding accidents in the past.
There are some very knowledgeable groups on FB about cervical instability.
Unfortunately, there are very few surgeons in the world that are knowledgeable about it and perform surgery. Which to me is surprising, as I'm sure there are more people with it, than we realize.
It affects my quality of life greatly. I do stretches, see a Chiropractor that doesn't use rough manipulation, muscle relaxers etc. I am now doing injections to numb the facet joints, which helps a little. Than ablation. Ablation, won't exactly help a lot of the symptoms, like nausea, dizziness, fatigue, dysautonomia (which regulates so much in our body) the various headaches, migraines and cervical neuralgia.
Best of luck. It's a long stressful road. I pretty much gave up finding a surgeon, as they are so busy. (The ones in the US). My insurance covers Mayo, and anything outside of that is not covered, therefore out of pocket. I don't have 50k to drop on a surgery. If it continues to worsen, I hope that I honestly don't live another 20 years. (I'm 40 right now). I currently work about 35 hours a week. I would like to go back to school to get bachelors in nursing, but I am exhausted just with work and daily life. I don't have a choice to go on disability. It involves a lot in the US. Plus, I would rather not be on disability. Mentally and physically it's better for me to work. I just want a better quality of life.
Hi Cassie
How are you?
Thank you for your reply.
I am 67, and have been a fitness fanatic since 2002.
I rode the road bike every where in Melbourne. I rode anything from 50 km to 200 km in a day.
I also went to the gym and used to bench press 75 kg age 64.
I have was a victim of 3 very bad accidents while riding the bike from 2013 to 2019.
It wasn't my fault because I was run over by negligent drivers, one of them was a drunk driver.
These accidents caused massive whiplash, fractured ribs, fractured left transfer processes, fractured pelvic ramus on both sides.
I recovered each time, and in 2019 it took me 10 months to recover.
I flew to the US because I didn't want a cervical fusion. The thought of being fused scared me.
In Florida Dr Ara Deukmedjan promised me that I would be pain free after the laser surgery, I recorded his words
Basically he did a micro Diskectomy using his laser tool.
He also ablated my facet joints nerves bilaterally from C5-T1.
These rhizotomies burned my neck paraspinal muscles causing me a drop head after the surgery. I somehow partially recovered from it but my trap muscles are still weak despite exercising. I hope he didn't destroy some muscle nerves.
He also did rhizotomies in my lumbar area.
I paid him $72000 USD for this butchering if my neck.
This money was from my traffic accident insurance
I still can't believe how can the medical board allow people like Deukmedjan to operate and destroy people's lives.
My quality of life is zero. I can't sleep at all at night and if I fall asleep I wake up with a lot of tightness in my neck and back.
I would love to go back to work because I am an IT professional with more than 30 years of experience but these injuries are debilitating me.
I go for walks, ride the indoor bike to try to get some fitness but I always get inflamed. The MRIs showed edema inside my neck.
Alfred