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Terrified over new diagnosis of breast cancer

Breast Cancer | Last Active: Jul 19 8:01pm | Replies (38)

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@victoryoverthis

Thank you for your guidance and encouragement. Good preparation with questions appears to be key. I live in a small city with limited services and pretty transient medical care providers. They tend to leave once their student loans are paid off, unless they are avid hunters and fishermen, so getting the care I need will require good preparation and self advocacy. Thanks again for your great advice.

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Replies to "Thank you for your guidance and encouragement. Good preparation with questions appears to be key. I..."

Everyone stands before their dx differently. I'm a more information is better type of person. So I read a lot about BC and the different types before I know what type I had, then as dx was narrowed from BC to TNBC BRCA2+, I was able to weed out all the other information I had previously read that I no longer needed to worry about. Then I was able to focus my attention on my specific dx.

I was able to work throughout my entire treatment process. For chemo, I didn't really loose my hair but it got real thin and tangled (curly hair) so I had my head shaved. Thankfully it was winter so caps were a great coverup (also I knit, so I made some cute hats to wear). Bilateral mastectomy was the only time I missed any work. I was fortunate to schedule all my appointments either real early in the morning or late in the day. I had been employed at the same place for over 15 yrs so I had a lot of good will built with my employer so I was able to flex my hours if I needed - it was also during Covid so I was working from home.

I too kept a journal of everyone I talked to and all my questions and the answers I was given. If they gave an answer I wasn't sure of I said "so you mean this" and restated in my own words. I still take my notebook with me to see my oncologist for my semi annual visits. I'm just 1yr+ into NED (no evidence of disease). For some appointments, not all, I had someone else attend with me - so there was a second set of ears to hear information; because once you hear "cancer" sometimes the brain stops listening to anything after that.

Attitude is another thing that helped me a lot during my journey. With all the medical advances and information out there (I stayed with reputable websites for my information), I always looked at my dx as a medical condition where a treatment existed. I needed to decide for myself how I was going to face each treatment and arm myself before treatment by knowing all the possible side effects and what I might be able to do to minimize those side effects before hand.

There will be good days and bad days this is a safe place for you to express your frustration, anxiety, blessings and ask advice or suggestions from people that have walked a similar path and know some of the potholes you might need to navigate. You know yourself, you must now advocate for yourself and you will find a way to navigate this - ask for help when you need it.