Update on my situation,
I had 25 sessions of pelvic radiotherapy and an additional 3 sessions of sbrt targeted to the lymphnode highlighted by the psma scan and 6 months of concurrent eligard .
I finished radiotherapy early September, PSA January 0.01 but of course I still had low testosterone, PSA June 0.01 and testosterone back up to regular levels so for the moment things seem controlled.
I must say the journey has been quite difficult,more than happy at the clinical results but have been dealing with some nasty fallout.
I've had a build up of lymphatic fluid due to prior prostatectomy and recent RT, I have almost constant pain in my leg and seem to have developed some kind of neuropathy which can be quite painful, some days are better than others and I'm hoping that things will improve as my body recovers from the treatment and the hormone therapy.
It was made an even more difficult time as 3 days after I finished my treatment my younger brother was admitted to a palliative care unit and after spending a week by his side he sadly passed away.
In the aftermath of this I became quite depressed and started developing all the other problems neuropathy e.t.c.
For anyone in a similar situation to myself I wouldn't wait until the PSA number rises ,once the pet psma had identified the infected lymph node I received the RT and 6 month concurrent ADT with PSA about 0.3.
I have some other issues which I'm navigating but staying positive that in time these will subside,I will probably not be the same person as before the treatment but thankful that for now I'm in remission, and with determination I can recuperate most of my physical and mental wellbeing.
Wishing all fellow travellers on this road a positive journey.
Andrew Green