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A Bizarre Change in Condition

Polymyalgia Rheumatica (PMR) | Last Active: 3 days ago | Replies (35)

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@glinda47

Agreed. Unless one has a clearly defined AI disorder such as RA, they seem to flounder around. Most just don't have the time to really dig in and figure out what might be happening. As you noted.

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Replies to "Agreed. Unless one has a clearly defined AI disorder such as RA, they seem to flounder..."

I’m so sorry for your awful experience you had with that rheumatologist!!
Sometimes you need to see what qualifications the doctor has and where he went to school,etc.
Over forty years ago I had a PCP, an internal medicine doctor who was getting close to retirement. He was educated at Loma Linda University and med school and was absolutely the smartest doctor I have ever had. He diagnosed my Reactive (formally known as Reiters syndrome) Arthritis before a rheumatologist saw me and confirmed it! It was a big deal then cause mostly men get this, only 2% women get it!
Another good trait of this doctor was that he listened to me—I was in the medical field and had a tendency to diagnose myself😂, but he listened and did all the appropriate tests and some of the time I was right, lol.
I do understand your frustration in finding a doctor who will really listen to you and make that extra effort to help you! I really hope you find a good one—maybe a specialist in auto immune disorders—maybe you can get a recommendation through the Mayo Clinic?
I also have osteoporosis and they have me on an IV infusion called Reclast. It is a 15 minute infusion you get once a year for about 5 years. They tried the oral medications on me and I had horrible GI problems with it. No bad effects from the IV. You might want to check into it after you get all your other stuff taken care of!
Good luck and best wishes!