1. < Post-COVID Recovery & COVID-19

Any long Covid people here who developed lung nodules?

Posted by ericy210 @ericy210, Jun 16, 2023

As part of the clinical long Covid study I’ve been doing for a year, I had a clean chest X-ray a year ago. Monday they found a 9mm nodule in my right posterior lung as well as “minor air trapping.” I’ve never smoked.

They referred me to their (University of Illinois Chicago) Lung Nodule department. The said they have seen cases lung nodules with long Covid. My symptoms have been fatigue and brain fog. This was very unexpected and worrying, since my dad died of lung cancer two years ago and cancer also got his sister and mom.

Have you seen any reputable studies or articles on this combination? I’m finding quite a few on my own and would like to see someone else’s “homework” if they’ve already been looking at it.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

anuranaich | @anuranaich | Jun 18 3:50am
In reply to @ls1 "I too developed multiple lung nodules in both lungs my shortness of breath is extreme none..." + (show)
@ls1

I too developed multiple lung nodules in both lungs my shortness of breath is extreme none of the Dr’s have provided anything to improve my situation

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How are you currently? Is it improved?

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anuranaich | @anuranaich | Jun 18 3:51am
In reply to @batwood23 "Yes! A year after I had Covid ( relatively mild case- just severe cough) & 10..." + (show)
@batwood23

Yes! A year after I had Covid ( relatively mild case- just severe cough) & 10 months of long Covid my lung X-rays showed many nodules. My dr said my lungs looked like I had a history of chronic lung disease. I hadn’t smoked since 1970, and had no symptoms til Covid, plus routine X-rays in the past didn’t show any nodules so I know it’s the long Covid. I still have shortness of breath but no cough
I’m a retired nurse & when I read the X-ray report I was shocked & scared

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@batwood23 How are you currently? Is it improved?

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anuranaich | @anuranaich | Jun 18 11:24am
In reply to @clover52 "I had Covid over 2 years ago. I also have a lung nodule that my doctor..." + (show)
@clover52

I had Covid over 2 years ago. I also have a lung nodule that my doctor is keeping an eye on. Very scary to deal with. I also have gut issues weight gain swelling in legs fatigue and depression. This group is a life saver!!

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@clover52 How are you now? What is the latest update?

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anuranaich | @anuranaich | Jun 18 11:30am
In reply to @jodidido "of course, scared and googling tonight! 53 female and part of covid study since i had..." + (show)
@jodidido

of course, scared and googling tonight!

53 female and part of covid study since i had pneumonia and in ICU, no issues prio, survived after starting barcinitib, told i would prob not be coming home....anyways, go randomly to hospital for study stuff.....random had chest CT Friday....and nodules!! im shocked been 2 years. still no call or anyone reaching out yet, I need to stay off the google! glad i found you all. I am overweight and fell blah but thinking it was due to divorce and laid off within a week this summer, I need to know what you all are doing to prevent more or just any tips....I need to get on a healthy eating anyways, so this is going to put that in motion

one daughter, a sneior in high school and I am scared! I have ptsd from ICU, 90 liters and was to go on vent Labor day weekend and they told me to get my affairs in order and now I thougth I was doing good....and this happened.
so take lots of D3? wil they dissolve have anyone been told? I am eager to learn and prevent cancer. and very scared for my kid being alone!!! thanks, J

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@jodidido how are you now? What is the latest status? I heard this nodules are common after severe covid, and it will go after some months/years. You need to do breathing exercise.
Want to know your current status..

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Myak | @janet23 | Jun 19 11:28am

I developed a GGO (ground glass opacity) on my left lower lung after a mild case of Covid in 2020, and I was started on oxygen in 2021 after the COVID-19 shots because I developed hypoxia and multiple heart conditions.

Pulmonary followed me for annual CT scans and the GGO continued to grow. Last year, the GGO developed a semi-solid, 8 mm component that lit up on a PET scan. I had Thoracic Surgery in April to remove it. The pathology report showed adenocarcinoma stage 1a. I encourage everyone with lung nodules or GGOs to get regular surveillance scans.

I also had a liquid biopsy before and after lung surgery that showed I have circulating tumor cells ( CTC) in my blood. This test is not usually ordered and it is only covered by insurance for a limited number of diagnoses. I have cancer growing somewhere else in my body that is shedding tumor cells into the blood. I am working my doctors to try and figure out where.

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donlaujr | @donlaujr | Jul 4 2:30pm

Is it a forgone conclusion that lung nodules are cancerous in long covid patients ?

Has anyone had experience with ucsf ?

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 9 4:08pm
In reply to @donlaujr "Is it a forgone conclusion that lung nodules are cancerous in long covid patients ? Has..." + (show)
@donlaujr

Is it a forgone conclusion that lung nodules are cancerous in long covid patients ?

Has anyone had experience with ucsf ?

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@donlaujr, a lung nodule can be cancerous. But most lung nodules aren't cancerous.

Lung nodules are small clumps of cells in the lungs. They're very common. Most lung nodules are scar tissue from past lung infections.

Lung nodules usually don't cause symptoms. They're often found by accident on a chest X-ray or CT scan done for some other reason. Read more from Mayo Clinic here https://www.mayoclinic.org/diseases-conditions/lung-cancer/expert-answers/lung-nodules/faq-20058445

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1 reply
donlaujr | @donlaujr | Jul 9 4:50pm

Thanks for the reply, I have a follow up xray later this month to confirm the nodule sizes have not increased.
My goal is that the nodules go away by themselves, I also am following the clinical trials at ucsf using monoclonal antibodies to treat long covid

More to follow

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1 reply
stlmo | @stlmo | Aug 29 6:04pm
In reply to @donlaujr "Thanks for the reply, I have a follow up xray later this month to confirm the..." + (show)
@donlaujr

Thanks for the reply, I have a follow up xray later this month to confirm the nodule sizes have not increased.
My goal is that the nodules go away by themselves, I also am following the clinical trials at ucsf using monoclonal antibodies to treat long covid

More to follow

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Did you check? Any updates

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