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Terrified over new diagnosis of breast cancer

Breast Cancer | Last Active: 1 day ago | Replies (37)

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@windyshores

I learned not to research much until I knew what I was dealing with. I liked the Mayo Clinic breast cancer book because it gave an overview.

You will find out if your cancer is fed by hormones (ER and PR), if it is HER2 positive or negative, the size and grade, and hopefully have an Oncotype Dx test to guide treatment. Many of us have avoided chemo thanks to that test.

I am almost 10 years out and had a grade 3, hormonal positive, 1.5cm tumor with lymphovascular invastion (in my lymph vessels but not nodes). I had mastectomies and did hormonal meds- no radiation or chemo.

Each of us is different but at this stage you cannot, as you know, have much of an idea of what will be needed as treatment, which is hard. Once you know, it actually gets easier and you just put one foot forward.

While waiting I took walks, watched movies- any distraction helped- and I also asked for a few Klonopin. I didn't use them but it helped that they were there.

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Replies to "I learned not to research much until I knew what I was dealing with. I liked..."

Thanks! That is helpful. Mine is .8 cm, so I am hopeful a lumpectomy and
hormone therapy or something will be all it takes. I will look for the Mayo
book. I am trying to distract myself which works for a while but the
waiting IS very hard.

Thanks!